Ask NAN blog

Teachings and tips for family caregivers navigating the needs of their aging loved one.

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Caregiver Burnout: How to Cope

Caregiving for someone suffering from Alzheimer’s disease is one of the most challenging jobs in the world, and it comes with a risk of what is known as “Caregiver Burnout.” With caregiver burnout, you are in a state of physical, emotional, and mental exhaustion that may also be coupled with a change in your attitude towards your caregiving role, from one of positive, caring, and rewarding to one of feeling negative, unconcerned, and resentful.

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Agotamiento del Cuidador: Cómo Afrontarlo

Cuidar a una persona con Alzheimer es uno de los trabajos más desafiantes del mundo y conlleva el riesgo de sufrir lo que se conoce como "síndrome del cuidador". Con este síndrome, se experimenta un estado de agotamiento físico, emocional y mental que también puede ir acompañado de un cambio en la actitud hacia el cuidado, pasando de una actitud positiva, cariñosa y gratificante a una actitud negativa, indiferente y resentida.

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Afrontar el Duelo de Cuidar a un Familiar

Es habitual que los cuidadores familiares que asisten a un ser querido con la enfermedad de Alzheimer experimenten un profundo sentimiento de duelo por todo aquello que se pierde a causa de esta enfermedad. El interés en actividades que anteriormente nos resultaban gratificantes y placenteras disminuye o deja de ser placentero. Esto suele observarse en la depresión, pero también puede atribuirse a una pérdida profunda. A continuación, le indicamos cómo afrontarlo.

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Facing the Grief of Caregiving

It is common for family caregivers helping a loved one with Alzheimer’s disease to feel a profound sense of grief for all that is lost to this disease. Loss of interest in activities we previously found rewarding and enjoyable are lessened or no longer enjoyable. This is often seen in depression but can also be attributed to a profound loss. Here’s how to cope.

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Comprender el aferramiento y la sombra

For caregivers of people with Alzheimer's disease and related disorders (ADRD), clinging and shadowing behaviors happen more often than not over the course of a day. Being followed everywhere and being repeatedly interrupted when trying to complete a task is a common source of frustration for many caregivers of loved ones with ADRD.

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El atardecer y cómo gestionarlo

El síndrome del ocaso (*sundowning*) es un estado de mayor agitación, actividad y conductas negativas que se manifiesta al final del día y durante las horas de la tarde-noche. Cuando se presenta este síndrome, la persona puede volverse exigente, suspicaz, irritable o desorientada, ver u oír cosas que no existen y creer cosas que no son ciertas; asimismo, puede caminar de un lado a otro o deambular por la casa mientras los demás duermen. A continuación, se ofrecen algunos consejos para intentar reducir la aparición de este síndrome y mitigar sus efectos cuando se produce.

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Sundowning and How To Manage It

Sundowning is a state of increased agitation, activity and negative behaviors which happen late in the day through the evening hours. When sundowning, the person may become demanding, suspicious, upset, or disoriented, see or hear things that are not there, and believe things that are not true. They may pace or wander around the house while others are sleeping. Here are some tips for potentially reducing the occurrence of sundowning and softening its effects when it does happen.

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Understanding Clinging and Shadowing

Para los cuidadores de personas con enfermedad de Alzheimer y trastornos relacionados (ADRD), las conductas de apego y de «sombra» ocurren, en la mayoría de los casos, a lo largo del día. Ser seguido a todas partes y ser interrumpido repetidamente al intentar completar una tarea constituye una fuente común de frustración para muchos cuidadores de seres queridos con ADRD.

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