Facing the Grief of Caregiving

 
 

It is common for family caregivers helping a loved one with Alzheimer’s disease to feel a profound sense of grief for all that is lost to this disease. Loss of interest in activities we previously found rewarding and enjoyable are lessened or no longer enjoyable. This is often seen in depression but can also be attributed to a profound loss.

What to do?

Feel your feelings, even if they are numb feelings, and make a conscious decision to re-immerse yourself in activities or events you once enjoyed, no matter how small.

Quick Tips:

  1. Assess your fears and roadblocks: Is it avoidance because of overwhelming and difficult emotions or stress? Or is it genuinely a lack of interest? Only you can determine this—brainstorm ways to address either of the roadblocks. For instance, if it is difficult emotions, process with a professional, friend, or journal. If it is a lack of interest, maybe find a buddy to pursue the activity you once enjoyed or sign up for a class.

  2. Routine: Routines can be great ways to combat a lack of interest by setting up your mind to kick in unconsciously. Make activities a habit! Set yourself a 30-day challenge. For example: for 30 days, I will journal, paint, or engage in a particular hobby for 1 hour from 10-11 am.

  3. Schedule time: Intentionally setting time aside to engage in an activity is vital. Sometimes due to lack of interest, this may be harder to accomplish. Try setting timers, scheduling appointments for yourself, or even signing up for a YMCA art class, etc., to hold yourself accountable.

  4. Try something new: Sometimes, trying something new may help spark new interests and hobbies. Each new activity can become an outlet and coping mechanism.

  5. Self-care and physical wellness: Always take care of your body and mind. Sleep, exercise, and eat well, among other healthy habits.

ADAPTED FROM: Haley, E. (2022), What’s Your Grief; https://whatsyourgrief.com/reconnecting-with-your-passions/ Mendez Campos, B (2021) Grief in Dementia Caregivers Presentation

 
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