Navigating Aging Needs LLC and ClinCloud Clinical Trials have partnered to pilot a virtual support service to improve Alzheimer’s disease trial retention by stabilizing or reducing the burden of family caregiver stress.
View the poster presented at CTAD 2022
Improve Alzheimer’s Disease Trial Retention by Managing Family Caregiver Stress
NAN coordinates with the clinical trial site to provide one-on-one virtual support to family caregiver partners through:
Assessment
Assessment of the patient’s medical, emotional, social, legal/financial risk & caregiver stress.
NAN Plan
NAN Plan to manage patient
risk and caregiver stress.
Follow-up
Weekly meetings via Zoom to implement NAN Plan and monitor caregiver stress.
Resources
Access to NAN website for high-quality caregiving resources.
Examples of how NAN reduces family caregiver stress of trial participation:
Travel
A family caregiver study partner worried the clinical trials schedule would interfere with a long-planned trip.
NAN and the clinical trials team collaborated to successfully adjust the schedule.
Medication Storage
A family caregiver study partner was at risk of compromising the investigational product because they did not have a way to keep it at the required temperature while traveling.
NAN and the clinical trials team collaborated to identify a storage solution. They enjoyed their trip and completed all study activities.
Communication
A family caregiver study
partner was frustrated by communication difficulties between the patient and the clinical trials team.
NAN provided recommendations to improve communication with the Alzheimer’s patient.