Ask NAN blog
Teachings and tips for family caregivers navigating the needs of their aging loved one.
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Getting Help With Your Filing Your Income Tax Returns
It is never too early to get organized with your finances and get ready to file your taxes. For many people this can seem to be a complicated, confusing, and daunting topic. Fortunately there are several services available for you to help you get through the maze. Here’s how to start.
A Checklist for Moving With Your Loved One
Planning a move is stressful. It can be overwhelming when thinking of all the entities that need to be notified. However, being proactive and utilizing checklists can help minimize that stress and ensure the various services and systems your loved one has come to rely on remain smoothly operating. Here is a list to help guide you.
Planning for a Funeral
It’s a curious aspect of American culture that while it is inevitable that everyone will die at some point in their life, no one seems very eager to plan for that eventuality. But, talking to your loved one now about funeral plans, no matter how far off, will save you a large amount of aggravation and uncertainty in the future.
Managing Incontinence
Many caregivers say that coping with incontinence is one of the most challenging parts of their duties. But with patience, compassion, and the latest tools, you can manage this challenge while preserving your loved one’s privacy and dignity.
Gestión de la incontinencia
Muchos cuidadores dicen que lidiar con la incontinencia es una de las partes más desafiantes de sus deberes. Pero con paciencia, compasión y las últimas herramientas, puede afrontar este desafío preservando al mismo tiempo la privacidad y la dignidad de su ser querido.
Managing the Stress of the Holidays
Holidays are traditionally a spirited, happy time, but they can be challenging for caregivers, their loved ones, and their families and friends. There are ways to help maintain the enjoyment of the holiday time, however, and let everyone focus on the family ― even if one of the family has Alzheimer’s Disease. Here are some tips.
Manejar el estrés de las Fiestas
Las fiestas navideñas suelen ser una época alegre y llena de vida, pero pueden resultar difíciles para los cuidadores, sus seres queridos y sus familiares y amigos. Sin embargo, existen maneras de mantener el disfrute de estas fiestas y permitir que todos se centren en la familia, incluso si uno de sus miembros padece la enfermedad de Alzheimer. Aquí les ofrecemos algunos consejos.
Superar las Dificultades para Bañarse y Ducharse
Ninguna actividad de cuidado personal es más difícil que ayudar a un ser querido a bañarse o ducharse. Dado que el baño es una actividad tan íntima, es posible que no desee ayuda. Sin embargo, para la mayoría de las personas con Alzheimer, llegará el momento en que la necesiten. Para que esta importante actividad sea un éxito, adapte su apoyo a las capacidades de su ser querido.
Overcoming Difficulties in Bathing or Showering
No personal care activity is more challenging than helping your loved one bathe or shower. Because bathing is such a uniquely private activity, your loved one may not want your help. But for most of our loved ones with Alzheimer’s disease, the time will come when they need some assistance. To ensure success with this important activity, tailor your support to match your loved one’s ability.
Coping with Auditory or Visual Hallucinations
Hallucinations can be caused by diseases like Alzheimer's, which change the way the brain interprets what is seen or heard. Hallucinations can be very convincing, with the result that our loved ones have a false understanding of what they are seeing or hearing. Here’s how to cope.
Servicio Privado y Cuidado de Acompañantes
Los servicios de “cuidado privado” y “cuidado de acompañante” tienen como objetivo ayudar a su ser querido a realizar de manera segura las actividades cotidianas, como el cuidado personal, la preparación de comidas, la limpieza de la casa y ofrecerle compañía. Estos servicios también pueden ofrecer un descanso a los cuidadores, que pueden aprovechar el tiempo para estar solos. A continuación, se incluye una lista de empresas locales recomendadas de cuidado privado y de acompañante que pueden resultarle útiles en su camino como cuidador.
Facing the Grief of Caregiving
It is common for family caregivers helping a loved one with Alzheimer’s disease to feel a profound sense of grief for all that is lost to this disease. Loss of interest in activities we previously found rewarding and enjoyable are lessened or no longer enjoyable. This is often seen in depression but can also be attributed to a profound loss. Here’s how to cope.
Adult Day Centers
“Adult Day” centers are intended to help provide care and companionship for your loved one who needs assistance or supervision throughout the day. Adult Day can provide valuable respite to caregivers while encouraging socialization and engagement for your loved one. Here is a list of local adult day centers that might be useful in your caregiving journey.
Private Duty and Companion Care
“Private Duty Care” and “Companion Care” are services intended to help your loved one to safely get through day-to-day activities such as personal care, preparing meals, housecleaning, and offering companionship. These services can also offer a break for caregivers, who can use the time to be on their own. Here is a list of recommended local private duty and companion care companies that might be useful in your caregiving journey.
If Your Loved One Wanders
While having your loved one wandering around the house might be challenging to you as a caregiver, it’s not necessarily unsafe. However, some wandering can be dangerous, including going into areas of the house such as stairwells, decks, hot tubs, or swimming pools. Also dangerous is your loved one leaving the house, yard, or property alone. To address the challenges of your loved one wandering, you can try some of these tactics.
¿Mi ser querido está deprimido?
A medida que la enfermedad de Alzheimer cambia la capacidad de un individuo para recordar y pensar, también puede cambiar la capacidad de controlar las emociones. Hasta el 40 por ciento de las personas que padecen la enfermedad de Alzheimer también sufrirán una depresión significativa. Dado que es posible que su ser querido no pueda expresar sus sentimientos, es posible que se recurra a los cuidadores familiares para que le ayuden a identificar los síntomas de la depresión. La Escala de Cornell para la depresión en la demencia puede ayudar en esta situación.
Sundowning and How To Manage It
Sundowning is a state of increased agitation, activity and negative behaviors which happen late in the day through the evening hours. When sundowning, the person may become demanding, suspicious, upset, or disoriented, see or hear things that are not there, and believe things that are not true. They may pace or wander around the house while others are sleeping. Here are some tips for potentially reducing the occurrence of sundowning and softening its effects when it does happen.
Activity Ideas for Loved Ones with Low Vision
There are two main reasons your loved one may be having trouble with vision. First, everyone has changes in their vision as they get older. Cataracts are the most common affliction and lead to “cloudy vision” with a slow reduction in people’s ability to see. Secondly, our loved ones with Alzheimer’s disease or related disorders (ADRD) are likely to lack the ability to understand what they see or remember what a particular item is used for. Given these changes, customizing enjoyable activities for your loved one with low vision abilities might take some trial and error to find the right fit.
Sleep Disturbance in Alzheimer’s Disease and Related Disorders
People with Alzheimer’s disease and related disorders (ADRD) often have problems with sleeping or may experience changes in their sleep schedule. Scientists do not completely understand why these sleep disturbances occur, but as with changes in memory and behavior, the impact of disease on the brain can result in changes in sleep.
Understanding Clinging and Shadowing
For caregivers of people with Alzheimer's disease and related disorders (ADRD), clinging and shadowing behaviors happen more often than not over the course of a day. Being followed everywhere and being repeatedly interrupted when trying to complete a task is a common source of frustration for many caregivers of loved ones with ADRD.
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