Happy New Year!
Dear Caregivers,
September always feels like a second "New Year" to me. Perhaps it was all those years in school, where I followed up a summer vacation with sharpening pencils, getting new notebooks, and clearing off my desk: It puts me in the mood to make a fresh start on things!
For a caregiver of a loved one suffering from Alzheimer’s, that September urge for a fresh start can be a good feeling as well. For many caregivers it may feel as if every minute is filled with something that needs to be done, with your constant managing of your loved one's meals, medications, and appointments. And that can mean pushing aside big, important projects for "sometime later."
So, in the spirit of the “September New Year,” I propose that you make this the time that you finally get started on one of those long-term projects that you might have been putting off. Here are some project ideas to help get you started:
Build a “Caregiving Command Center:” Choose an area in your home where you gather all the necessary caregiving information you need into one place. It might be a paper folder, a shoe box, or a computer file. Pull together items such as a list of medication, key phone numbers, legal documents, a calendar, critical contact information, and other items that you have found yourself accessing on a regular basis. Start with gathering only five things, perhaps, and build from there. You have begun!
Tackle One Big Thing You’ve Been Avoiding: Perhaps you have put off having a conversation with a loved one that involves a touchy subject. Maybe it’s about curtailing driving, creating an Advance Directive, or going to an Adult Day center. Or maybe it’s simply making an appointment to check out a nagging symptom that’s been happening for a while. When a project feels hard to start, make the first step easy: Simply “make a plan to make a plan.” That is, put an actual appointment on your calendar for yourself, when you will take the time to think through how to get started. You don’t have to solve the whole problem that day! You just have to make it a little easier to begin. Your NAN Navigator can help you think through how to approach such a conversation.
Organize Your Posse: As a caregiver, you continually run the risk of being the “go to” person for every task that arises. And when people ask “how can I help?”, sometimes it feels as though finding something for them to do is yet one more task for you to manage. Begin by making a list of family members and friends, and then make a list of things that need to get done on a regular basis, such as grocery shopping, picking up medicines, and driving your loved one to an appointment. Then start assigning specific tasks to various people who may be best suited for those activities. Then, the next time someone asks “How can I help,” you are ready to assign them a specific thing that you need to get accomplished. You might even begin keeping a calendar of when certain people do certain tasks.
With a loved one suffering from Alzheimer’s disease, you never know exactly what lies ahead in the coming months. But you can put a few things in place today that may make tomorrow a little easier.
Here are some more resources to help you get started:
Time Management for Caregivers:
There will never be more than 24 hours in the day, but there are ways to make those hours easier to manage. Here is an overview of techniques for making lists, using a calendar, prioritizing what matters most, delegating jobs to others and keeping important caregiving information organized. It’s an excellent place to begin your fall reset.
Caregiver’s Plan B:
What would happen to your loved one if you became sick, had an emergency or simply could not provide care for a period of time? A “Caregiver’s Plan B” identifies someone who could step in, and gives that person the information they would need to step in for you. Here’s how to create your Caregiver Plan B.
The Basics of Advance Directives:
Advance Directives help document your loved one’s wishes for care in case of an emergency, and identify who should make healthcare decisions if they are no longer able to speak for themselves. Here are the basics and how to begin.
Best,
Rosemary D Laird, MD, MHSA
Founder and Chief Medical Officer
“The beginning is the most important part of the work."
— Plato